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	<title>Comments on: Naming the damn thing!</title>
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	<link>https://soundsofshutter.com/misophonia/naming-the-damn-thing.html</link>
	<description>Blog about Misophonia and photography</description>
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		<title>By: mmaria</title>
		<link>https://soundsofshutter.com/misophonia/naming-the-damn-thing.html#comment-749</link>
		<dc:creator><![CDATA[mmaria]]></dc:creator>
		<pubDate>Thu, 12 Jun 2014 14:33:50 +0000</pubDate>
		<guid isPermaLink="false">http://soundsofshutter.com/?p=1205#comment-749</guid>
		<description><![CDATA[Bonnie,

thank you so much for the link you provided! 
I&#039;m also thankful to the term we&#039;re using now because of the same reasons you mentioned but then again I would be grateful for any term that we link to this issue :) I do agree with what you said and I hope someone and someday will find an appropriate way to call this.
Everything regarding this subject is completely out of our hand. First of all actually, they need to comprehend what Miso really is in order to put it in any kind of a group. What annoys me is when someone jumps to conclusions based on just a superficial glance to this problem.

Either way, calling it this way or another doesn&#039;t help us. If they cure my Miso I wouldn&#039;t spend a minute being annoyed how they call it, neither would the rest of us, I&#039;m sure... at least for a while :)]]></description>
		<content:encoded><![CDATA[<p>Bonnie,</p>
<p>thank you so much for the link you provided!<br />
I&#8217;m also thankful to the term we&#8217;re using now because of the same reasons you mentioned but then again I would be grateful for any term that we link to this issue <img src="https://soundsofshutter.com/wp-includes/images/smilies/icon_smile.gif" alt=":)" class="wp-smiley" /> I do agree with what you said and I hope someone and someday will find an appropriate way to call this.<br />
Everything regarding this subject is completely out of our hand. First of all actually, they need to comprehend what Miso really is in order to put it in any kind of a group. What annoys me is when someone jumps to conclusions based on just a superficial glance to this problem.</p>
<p>Either way, calling it this way or another doesn&#8217;t help us. If they cure my Miso I wouldn&#8217;t spend a minute being annoyed how they call it, neither would the rest of us, I&#8217;m sure&#8230; at least for a while <img src="https://soundsofshutter.com/wp-includes/images/smilies/icon_smile.gif" alt=":)" class="wp-smiley" /></p>
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		<title>By: Bonnie</title>
		<link>https://soundsofshutter.com/misophonia/naming-the-damn-thing.html#comment-748</link>
		<dc:creator><![CDATA[Bonnie]]></dc:creator>
		<pubDate>Thu, 12 Jun 2014 13:14:03 +0000</pubDate>
		<guid isPermaLink="false">http://soundsofshutter.com/?p=1205#comment-748</guid>
		<description><![CDATA[I could not agree more with this post! I&#039;ve started to refer to my son&#039;s issues as a Sensory Processing Disorder. I&#039;ve spoken with a neurologist at UCSF who said that if the processing of one or more of the senses is involved, then this can be considered a SPD. 

I am grateful for the term &quot;Misophonia&quot; as this helped connect me with others that are dealing with this disorder. However, when dealing with the medical community, it sounds like a made-up name and is not recognized as a DSM. 

I also have a problem with this being called a &quot;Mental Illness&quot; however, if a disorder is listed as a DSM, that is technically what it is. There is such a stigma to the &quot;Mental Illness&quot; label. I&#039;d like to rename Mental Illness and rebrand it. &quot;Cognitive Disorder&quot;? &quot;Emotional Disturbance&quot;? 

I&#039;ve always felt that Miso / 4-S is a neurological disorder with a psychological component. One of my concerns is that this is being treated by Audiologists, Psychologists and Psychiatrists.

There is some research being done on kids with SPDs out at UCSF headed by a Neurologist, Dr. Elysa Marco, which gives me hope. New imaging technology such as DTI Scans (a form of MRI)is able to see the differences in the brains and will help unlock the mystery of this disorder by establishing a biological basis.
http://www.ucsf.edu/news/2013/07/107316/breakthrough-study-reveals-biological-basis-sensory-processing-disorders-kidsi
This gives me hope.]]></description>
		<content:encoded><![CDATA[<p>I could not agree more with this post! I&#8217;ve started to refer to my son&#8217;s issues as a Sensory Processing Disorder. I&#8217;ve spoken with a neurologist at UCSF who said that if the processing of one or more of the senses is involved, then this can be considered a SPD. </p>
<p>I am grateful for the term &#8220;Misophonia&#8221; as this helped connect me with others that are dealing with this disorder. However, when dealing with the medical community, it sounds like a made-up name and is not recognized as a DSM. </p>
<p>I also have a problem with this being called a &#8220;Mental Illness&#8221; however, if a disorder is listed as a DSM, that is technically what it is. There is such a stigma to the &#8220;Mental Illness&#8221; label. I&#8217;d like to rename Mental Illness and rebrand it. &#8220;Cognitive Disorder&#8221;? &#8220;Emotional Disturbance&#8221;? </p>
<p>I&#8217;ve always felt that Miso / 4-S is a neurological disorder with a psychological component. One of my concerns is that this is being treated by Audiologists, Psychologists and Psychiatrists.</p>
<p>There is some research being done on kids with SPDs out at UCSF headed by a Neurologist, Dr. Elysa Marco, which gives me hope. New imaging technology such as DTI Scans (a form of MRI)is able to see the differences in the brains and will help unlock the mystery of this disorder by establishing a biological basis.<br />
<a href="http://www.ucsf.edu/news/2013/07/107316/breakthrough-study-reveals-biological-basis-sensory-processing-disorders-kidsi" rel="nofollow">http://www.ucsf.edu/news/2013/07/107316/breakthrough-study-reveals-biological-basis-sensory-processing-disorders-kidsi</a><br />
This gives me hope.</p>
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