Comments on: Chronic pain feeling

By: mmaria

mmaria — Fri, 14 Feb 2014 10:20:20 +0000

The whole my life, no matter what happened, I was telling myself that words: “What don’t kill you, just make you stronger!” We have to make something out of anything that life gives to us, in order to a “normal” fulfilling life.

Of course, all the best! –hugs–

By: Cara

Cara — Fri, 14 Feb 2014 08:31:28 +0000

I know exactly what you mean! All to well. Sometimes feeling like you’re all alone in what you’re going through or how you feel can be the worst feeling of all! Although, you wouldn’t wish the pain on your worst enemy let alone a friendly face, it’s nice knowing you’re not alone and that somebody else truly understands!

It’s definitely been a very rough ride! But I guess it only makes us stronger, right? At least that’s what I keep telling myself! LOL You’re definitely right about laughing!

I’m sorry to hear it isn’t an option for you! But as you said, if even one person sees it then it’s worth it!

I wish you all the best and many pain free days/years to come!

Take care!

By: mmaria

mmaria — Thu, 13 Feb 2014 07:40:37 +0000

I know it’s sounds terrible to say this, but I’m glad someone understood what I was saying. You know what I mean. I’m not glad that anyone feel the pain of course.
I could only imagine how must be for you to get trough all of this! I’m also really glad you mentioned the pump option and left you contact information. I hope someone will come across this blog and find that information helpful. Great that you finally found some relief!
Unfortunately, that’s not an option for me. I don’t have opportunity for trying it.
Take care and try to laugh as much as possible

By: Cara

Cara — Wed, 12 Feb 2014 15:12:58 +0000

Hi there. I was just reading your post on chronic pain, and unfortunately, I can so relate to you! I’ve dealt with chronic pain for 11 years. I broke my tailbone on, of all the crazy things, a rollercoaster! Many doctors, procedures, injections, physical therapy, surgeries etc later, my pain only worsened. I had become the exception to the rule! I searched and searched for help, all over the country. It was such an emotional rollercoaster, no pun intended lol. And there were times when i faced rejection from a doctor with the dreaded “there’s nothing more we can do to help you” response that I just had to stop the fight for awhile. I wasn’t able to take yet another low in my journey. I would tell My amazing supportive family, I need a break. I need to quit the fight for a few weeks or however long. I knew I’d start the fight again. Giving up completely just wasn’t an option. I was 30 when I was injured, and had a 5 year old daughter. So I know just what you mean when you say you had no fight in you that day! I’m not sure if you still suffer with chronic pain or not, but I wanted to offer some information. You may already know all about it, but just in case you don’t, I thought I’d share! I was finally told there were no other options out there for me. It was just down to pain management. After many years on different pain killers, my doctor suggested a pain pump (or morphine pump), which is technically called an intrathecal pump. When I heard morphine pump I immediately said no. I was given morphine when I had my daughter c-section and I’d fall asleep mid sentence. Again, I had a 5yo daughter to take care of and too much of my life to live…I couldn’t live as a zombie. After awhile, I started to do some research on the pain pump. I was a member of a tailbone support group on Yahoo & searched for the pain pump. I came across the most amazing group ever called “Pumpsters”. It was devoted to information, help and support for anybody with a pump, or looking for information. I was a member there for awhile and with the help of some truly wonderful, caring people, I decided to go for it. I found a Dr who did pumps (not too many do), they did a trial and while in the hospital, I sat up in the bed with no pain for the first time in years! My trial was successful & I had my permanent pump implanted. The pump will not give 100% pain relief. It’s a last resort option for people where there is no cure. The pump lasts usually 5-7 years and then the battery dies and they have to replace the entire pump. I had my 2nd pump put in in June 2013. It’s an outpatient surgery and isn’t all that bad. It has given me SO much of my life back. I was given back quality of life! For me, it’s my miracle! Again, I’m not pain free. It’s not a cure. But I’d say it takes away close to 75% of my pain. For me, that’s a huge success! If anybody would like to discuss this further or would like some information, please feel free to email me. My email is cara@cebridge.net. I hope you’re having a pain free day today!
Cara